Your child has been on DLA for years. The money has helped. The routines are set. And now a letter arrives from the DWP saying it’s time to move to PIP.
The transition from DLA to PIP happens around your child’s 16th birthday. It’s not automatic. The assessment is different. The criteria are different. And the outcome isn’t guaranteed. In Scotland, DLA moves to Adult Disability Payment instead of PIP, and Northern Ireland runs its own DLA and PIP system. This guide is for England and Wales.
This transition trips up a lot of SEND families. Knowing what happens next, and preparing early, makes it manageable.
When does it happen?
The DWP will write to you (or your child) around their 16th birthday, inviting them to claim PIP. A preliminary letter usually arrives a couple of months earlier - at around 15 years and 10 months - but the formal invitation to claim comes at or just after the 16th birthday. The main exception is a child who is in hospital on their 16th birthday; their invitation is sent when they leave hospital instead. DLA doesn’t stop immediately. As long as your child claims PIP by the date given in the invitation letter and then keeps the claim moving, returning the PIP2 form and attending any assessment, DLA continues until the PIP decision is made, so there shouldn’t be a gap in payments. Miss that date, though, and DLA is first suspended, not stopped: your child then has a further 28 days to claim PIP, and claiming within that window restores the DLA as though it had never paused. Only if that second deadline also passes does the DLA stop for good. The claim deadline is still the one to protect.
- DWP preliminary letterAround 15 years 10 months. A heads-up that the PIP invitation is coming.
- DWP writes to youAround your child’s 16th birthday. The formal invitation to claim PIP.
- PIP claim startedMake the PIP claim, usually by phone, by the date in the invitation letter. This is the step that protects the DLA.
- PIP2 form returnedComplete the “How your disability affects you” form the DWP then sends.
- Assessment arrangedAn assessor (usually a health professional) reviews the claim. May be paper-based, phone, or face-to-face.
- Decision letterThe DWP tells you the outcome, including daily living and mobility components.
- DLA ends, PIP beginsWhatever the outcome, DLA carries on for 28 days after the decision. If PIP is awarded it takes over when the run-on ends; if not, the DLA simply stops.
This is the transition process you’ll go through. A DLA-to-PIP reassessment decision currently takes around 22 weeks from claim on average, according to DWP’s official statistics to April 2026. Provided the claim went in by the deadline and the PIP2 form and assessment steps are kept up, your child’s DLA won’t stop until the PIP decision is made. There shouldn’t be a gap in payments, even if the assessment takes months.
How PIP differs from DLA
PIP and DLA are fundamentally different benefits. They assess different things in different ways.
| DLA | PIP | |
|---|---|---|
| Components | Care + Mobility | Daily Living + Mobility |
| Care/Daily Living rates | 3 rates (lowest, middle, highest) | 2 rates (standard, enhanced) |
| Mobility rates | 2 rates (lower, higher) | 2 rates (standard, enhanced) |
| Assessment | Paper-based (DLA form) | Health professional assessment |
| Focus | Help needed compared to same-age child | Impact of condition on daily activities |
| Points system | No | Yes (scored against descriptors) |
| Reviews | Fixed-period (often 3 years) or indefinite; some run to age 16 | Varies - short fixed-term, or longer awards for stable conditions; reviewed before award end |
The biggest change is the assessment. DLA is decided on the paperwork you submit. PIP usually involves a face-to-face or telephone assessment with a health professional who scores your child against specific descriptors.
The PIP assessment
The PIP assessment scores your child across 10 daily living activities and 2 mobility activities. Each activity has descriptors worth different points.
Daily living activities include: preparing food, eating and drinking, managing treatments, washing and bathing, managing toilet needs, dressing, communicating, reading and understanding signs, engaging with others, making decisions about money.
Mobility activities include: planning and following journeys, moving around.
To score the standard rate daily living component, your child needs 8 points. For the enhanced rate, they need 12 points. The mobility component is scored the same way across its two activities: 8 points for the standard rate and 12 for the enhanced rate. These thresholds directly determine the level of award.
| Component | Standard | Enhanced |
|---|---|---|
| Daily living | £76.70 | £114.60 |
| Mobility | £30.30 | £80.00 |
These figures are worth knowing before the assessment - they make clear what is at stake financially, and why getting the evidence right matters.
The PIP descriptors use specific language. Read them carefully before the assessment and think about which descriptor best matches your child’s actual abilities. Don’t undersell the difficulties. If your child can do something “but only with help” or “but not reliably,” say so.
Why families lose money
Many families receive a lower PIP award than their DLA award, even when the child’s needs haven’t changed. This happens because:
- DLA has three care rates. PIP has two daily living rates. Some children on DLA middle rate care don’t score enough points for PIP standard daily living.
- The assessment method changes. DLA relied on your written evidence. PIP relies partly on an assessor’s judgement, and assessors don’t always understand complex needs, especially hidden disabilities.
- PIP descriptors don’t map directly to DLA criteria. The things PIP scores (like managing money or reading signs) aren’t the same as what DLA assessed.
- The assessment process frequently underestimates genuine needs. Many PIP assessments initially scored at zero points are later overturned at tribunal, showing that the initial assessment didn’t capture the full picture of your child’s needs.
How to prepare
Start preparing well before the assessment:
- Gather updated evidence - recent letters from professionals (GP, consultant, therapist, school)
- Read the PIP descriptors - understand exactly what’s being assessed
- Keep a diary for 2-4 weeks showing daily support needs
- Describe how your child is on most days - a difficulty counts towards the score when it applies on more than half the days, so weigh the harder days alongside the easier ones rather than describing only a good day or only the worst
- Note what happens without help - if you stopped assisting, what would happen?
- Prepare your child if they’ll attend the assessment - explain what will happen
Preparation makes a genuine difference in how the assessment goes. Get these tasks started well before the assessor visits.
DLA was about your child compared to a same-age peer. PIP is about the impact of their condition on daily activities regardless of age. At 16, many tasks that were “normal for a child” become expected adult skills. Frame your evidence accordingly.
If PIP is refused or awarded at a lower rate
If you disagree with the PIP decision, you can:
- Request a mandatory reconsideration (MR), usually within one month of the decision. A later request can still be accepted if you have a good reason, up to 13 months from the decision
- Appeal to the tribunal, usually within one month of the mandatory reconsideration notice, if the MR isn’t successful. A late appeal can still be accepted, up to 13 months from that notice, if you have a good reason
The PIP tribunal success rate is around 65 to 70%, according to DWP’s official statistics to October 2025. Like DLA, if you believe the decision is wrong, challenging it is worth doing.
Getting help
Citizens Advice helps with PIP claims and appeals. They can help you prepare for the assessment and support you through a mandatory reconsideration.
Scope has guides on the DLA to PIP transition, including what to expect from the assessment.
Disability Rights UK publishes detailed PIP guidance and factsheets.
Start preparing early
The letter will come. When it does, you’ll be ready if you’ve already gathered evidence, understood the descriptors, and thought about how your child’s needs translate into PIP language.
The transition is stressful, but it’s manageable. And if the outcome is wrong, the appeals process is there to fix it.


